Battling Breast Cancer – From Fear to Courage: Chemotherapy

Chemo made me feel like I was in a sci-fi horror film, like “The Fly” (starring Jeff Goldblum and Geena Davis). Like Goldblum’s character, as he transformed into an insect, I was fascinated by every change in my body. My main focus, though, was to do the following very well:  eat, sleep, and poop. These things were essential for my body to be as strong as possible during this treatment.

I had chemo infusion treatments on my Fridays off from work. After every treatment, I went to my acupuncture appointment with Larry Godwin, L.Ac., in Alexandria, VA. His treatments provided immune system support and helped me avoid nausea. I didn’t know what to expect from chemo, other than the hair loss.

I felt woozy after the first infusion. My body erupted in sweat every night, and my boyfriend said he could have fried an egg on my body. My brother, David, explained that every cell in my body was reacting to the chemo and screaming, “WTF!”  The first physical change I noticed was my tongue. It was purplish like a Chow Chow dog, but mottled. My hair was thinner.

After the second infusion, my period stopped… forever, as it turned out. A large patch of hair at my forehead disappeared. I started wearing scarves.

As time went on, the palms of my hands became blotchy and dirty-looking. My fingernails and toenails had dark stripes. My cuticles and nail beds thickened, but I didn’t lose any nails. I lost all – and I do mean all – of my body hair, even my eyelashes. It was weird to see the little holes where my eyelashes had been. I couldn’t breathe as deeply as I could before the treatment. And, to my dismay, I couldn’t even pee straight. It trickled out in a crooked stream and dribbled down my thigh.

I paid attention every day to how well I was eating, sleeping, and pooping.

Eating: I bought higher quality food and water and cooked most of my meals. My appetite was very good and my weight stabilized. The oncologist told me to avoid raw foods during chemo because of my immune system and low white blood cell count.

Sleeping: I aimed for seven hours, but I was always so hot and often had insomnia. (I wouldn’t take any sleeping pills because I was already taking enough drugs between chemo, anti-nausea medication, and the shots I had to give myself to boost my white cell count.)

Pooping: All was well in the poop department, except for a brief bout with hemorrhoids.

When the chemo drug regimen changed for the second half of the treatment, my knees started hurting. I was limping and it was painful to walk, especially up and down stairs. On my boyfriend’s recommendation, I mixed a supplement called bromelain powder with water. It seemed to help because I stopped limping within a few hours. Even though the pain ended, I had to work through joint stiffness in my knees and hips for about six months after chemo.

Now here’s where I think my new diet and the initial acupuncture helped: I didn’t gain weight, get mouth sores, heartburn, “chemo brain,” nausea, constipation, diarrhea, or fatigue. That was significant because I could eat without any problems, work every day, go to the gym a few times a week, and play tennis once a week. According to lab tests, I was very anemic; but, I felt physically weak only about once every two weeks.

Throughout chemo, I kept my focus simple: eat, sleep, and poop.

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The Sister’s Perspective – Next Stop: Chemo!

Kim’s breast cancer journey continued with chemotherapy treatments.  I had committed to accompany her to the clinic so she didn’t have to face it alone or make arrangements for someone else to go with her each time.  I’d heard stories; we’ve all heard stories. However, when faced with cancer, you can follow the script or you can make your own story. Kim was making her unique story.

For my part, instead of doom and gloom, I chose fun and games to keep our minds positive and to provoke laughter when I could.  There’s little for either patient or companion to do during the treatment.  I had anticipated a long stretch of near-fatal boredom.  Other than that, neither of us had any idea what the process would be like.  How would we pass the time?  As readers, Kim and I always carry something to read in case we have to stand in line or languish in a waiting room.

This occasion was shared, not solitary, so instead of books, I thought of taking puzzles and games as well as magazines to entertain us.  My favorite was a book of visual puzzles, Double Vision: Addictive Photo Puzzles that Challenge Your Attention to Detail, by Megan McFarland. The objective is to look at two photos that appear to be identical, but have a number of subtle differences for the viewer to discover.  You can choose from several levels of difficulty and complexity.  Each puzzle tells you how many differences there are.  Your task is to discover the most differences in the shortest period of time.  After several rounds of competitive play, we moved on to talking and laughing; gradually, Kim wound down and said she needed a nap.  I watched her sleep and wondered how she was doing.

Later, starving, we looked for a restaurant.  The clinic staff had told us we could bring food the next time.  No need to tell us twice! In fact, we became almost festive about the prospect of eating and packed a picnic basket every time with foods from Kim’s blood type diet. Fun, games, and food — who knew?

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