Battling Breast Cancer – From Fear to Courage: Preparing for Chemotherapy

Chemotherapy fits the adage, “The treatment is worse than the disease.”

I researched my chemo drug regimen of adriamycin, cytotoxin, and taxol in Dr. Susan Love’s Breast Book. I never knew so much could be written about the breast. The book is encyclopedic.

Adriamycin, in particular, was scary.  It can cause heart problems and a blood disorder leading to leukemia. (If you recall, Robin Roberts wound up with a blood disorder a few years after she finished her breast cancer treatment; and she ended up having a bone marrow transplant and chemo again. I’m not certain, but it may have been a latent side effect of her first chemo treatment.)

The possibility of “chemo brain” terrified me.  My livelihood depends on my brain power, and I did not want “decreased cognitive function,” as Dr. Susan Love described it. Chemo brain could be a temporary or long-term condition.

I was also concerned that chemo could stress my heart and liver. My chiropractor, Dr. Six, recommended CoQ10 (ubiquinol form) for heart health and milk thistle for liver health. As for my “chemo brain” concerns, I simply prayed and hoped my plan to fortify my body would work.

My surgeon assured me I would lose my hair. Many Black women have an attachment to long hair, and I had loved mine: thick, easy to style, naturally black, and never-been-dyed. My sister, Cheryl, often described my hair as being “strong as cast iron,” yet it was about to become a casualty to chemo. I prepared myself.

My last chemical “touchup” to straighten my new hair growth was in mid-January, before I was diagnosed. Instead of getting the “touchup,” I had my hair styled in  “goddess braids” instead —  thick cornrows with extensions — so I could grow out my natural hair. After six weeks, the virgin hair had grown long enough for “The Big Chop”  — my way of transitioning from having tresses to being bald. I was contemplative about the coming transformation and preparing myself to let go.

In late April, I drove to a barber shop and took the braids out in the parking lot. On my way in, I threw the hair extensions in a garbage can. I told the barber I was doing “The Big Chop” in preparation for chemo. He didn’t seem to care about the reason. He ruthlessly mowed my hair down to a tiny afro, collected my money, swept up my locks, and pitched them in the trash.

It was the first time I’d seen the shape of my head unframed by thick, long-ish hair. It was the first time I’d felt my natural texture since I was 14. I also discovered I have my father’s receding hairline. Hmm…I didn’t see that coming!

Considering all the things about cancer and chemo that could go from bad to worse, having a bald head was an increasingly superficial concern.

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The Sister’s Perspective: Cushioning the Blow

I don’t remember what I said when my sister, Kim, first told me of her breast cancer diagnosis.  For sure, I knew there was nothing I could do to fix her.  Certainly, I had no original thoughts about her crisis.  So, I listened to her strategy for beating cancer by taking charge of her own health and learning as much as she could about the disease and its triggers for her body.  This was her search and vanquish mission.  Kim’s doctors were merely staff.

Maintaining a positive attitude, along with being proactive, was the approach my sister chose; and a supporter could do no less.  So, what can you do for someone who appears to have it all together?  My first inspiration came shortly after Kim’s surgery.  She needed to cushion and protect the area just under the incisions below her armpit.  I went home thinking about a way to make her more comfortable and less afraid of disturbing the drainage tube and triggering  lymphedema.

After a bit of internet research, I found that what she needed was a pillow shaped like a half moon. Good start, but who wants to carry a pillow everywhere all day long?  So, I added a shoulder strap exactly like one on a shoulder bag.  We’re close to the same height, so I measured the strap length and size of the pillow on myself and drew a pattern.  The rest was easy—picking pretty, cheerful fabric, pinning, cutting and sewing.

By day two of her recovery from surgery, I delivered the zingy pink and green pillow to Kim.  No one has a bigger grin than Kim when she’s surprised or delighted with something.  The pillow was a huge success!

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